Friday, March 28, 2014

1 in 68. 2 of 2.

If you are an autism parent, I'm sure you saw the massive social media frenzy with yesterday's announcement from the CDC. Their new rates of autism are 1 in 68.

Image Source

Well, sort of.

The numbers were accurate 4 years ago.

If you were 8 years old.

And, if you lived in 1 of 11 test site areas.

The rest of us out there were not included in those numbers. Like my boys (who were too young). And like my entire State (which was not one of the test sites).

The whole thing makes me want to puke. Seriously.

I was in a craptastic mood because of the latest and greatest "news" from the CDC and was being fairly vocal about it online when one of my Facebook friends asked me why I was upset.

For SO MANY reasons!

As I told her, it's isn't just about the CDC "math". They obviously need a larger sample size for the analysis to be of any actual value. This 1 in 68 business is just fluff. We need the REAL, CURRENT numbers!

As you know, I have 2 boys diagnosed on the spectrum. Through my nonprofit work I know hundreds upon hundreds of affected children and families that are LOCAL in my area.

In fact, a mom I know said that a classroom in her school has an incidence rate of 1 in every 5 kids in one grade. 1 in 5! And, the next grade is about 1 in every 10 kids. 1 in 10! This is only 2 grades in 1 elementary school, and there are that many kids with autism.

Does this not shock anyone?

Or, shall I say, does this not shock anyone that doesn't already have a kid with autism?

It's safe for me to say that in our local area, the average across schools is approximately 1 kid with autism in every classroom, and likely there are even more than that. This is just my own observation based upon what I know about the area, but I can tell you that my half-assed estimate is far more realistic than the CDC's numbers.

Once again, things are swept under the rug and autism families continue to struggle. Middle class autism families are often in huge crisis all the time. They can't afford therapies because they are too poor (and our State still refuses to mandate autism coverage) and they don't qualify for help from the government because they're too rich. That's a freaking joke. Too rich. Most of these families are single-income because autism can be so all-consuming.

These kids slip through the cracks, they don't get the interventions and education they need, the parents are stressed to the max, some of those marriages fall apart, and the cycle of crisis continues on.

More kids get diagnosed every single day. I meet new families almost all the time. It keeps getting worse.

When will enough be enough?

When will the rate of autism be so shocking to the entire nation that sweeping change and action will be demanded? Does it have to get to 1 in every 5 kids? It may already be in some areas. Or, does it have to be a 100% incidence rate, like it already is with my boys?

8 comments:

gingerheaddad said...

The best line I have read in the last several days about the CDC article is "This 1 in 68 business is just fluff."

In the article the author points out why 1 in 68 cannot be applied to the whole population, which is what every media organization did. A lot of parents did, too.

Thank you for writing this and adding a different take on the now popular "rate" of autism.

Lindsay Beard said...

Really appreciating your blog, and finding this post especially important for others to read

Jennifer Hughes said...

The Sensory Spectrum is hosting a special blog hop of posts from bloggers in June and we'd love to have you participate! Just imagine a list of bloggers sharing their stories about what it’s like to have sensory challenges and what it means to have a sensory kiddo! Read more here: http://www.thesensoryspectrum.com/sensory-bloggers-blog-hop-information/

Joining in on this blog hop will undoubtedly get your blog more exposure as people will hop from one blog to the next to read the stories. I will also be tweeting everyone's stories during the month and highlighting some on my Facebook page.

I hope you'll join us!
Jennifer @ The Sensory Spectrum
(and you can find me @ The Jenny Evolution, too!)

Anonymous said...

Prisoner with autism, serving life w\o parole, writes a blog: paulmodrowski.blogspot.com

Aesd 11 said...

West Ham Incar Jasa Destro
http://www.football-images.net/2015-07-10/e32389ed5df4720c2d4a56711607bde5.jpg[img/]
Agen Indo11 Terpercaya indo11.com melaporkan, Penyerang AS Roma, Mattia Destro, dilaporkan tengah masuk radar pembelian klub Premier League, West Ham. Kehadiran pemain 24 tahun itu memang dibutuhkan oleh The Hammers untuk menambah daya gedor klub musim depan.
Meski telah memiliki lima striker saat ini, namun Slaven Bilic mengaku masih akan mencari sejumlah pemain untuk memperkuat klub yang bermarkas di Upton Park tersebut.
Lini depan memang tengah menjadi prioritas utama Bilic, terlebih hanyaDiafra Sakho saja yang dinilai mempunyai kemampuan mencetak gol terbaik di tim. Destro juga dinilai akan menjadi tumpuan lini serang West Ham yang di musim depan berlaga di kompetisi Liga Europa.
Musim lalu, Destro dipinjamkan ke AC Milan dan sukses mencetak 8 gol dari 31 penampilan di Serie A. Sebelum menjalani masa peminjaman di San Siro, ia sukses membukukan total 24 gol dari 57 penampilannya bersama Giallorrosi.
Bilic tentu akan senang dengan kedatangan sang pemain di bursa transfer musim panas kali ini. Pasalnya, mantan manajer Kroasia itu menargetkan West Ham bisa berprestasi lebih baik.

Aesd 11 said...

West Ham Incar Jasa Destro
http://www.football-images.net/2015-07-10/e32389ed5df4720c2d4a56711607bde5.jpg[img/]
Agen Indo11 Terpercaya indo11.com melaporkan, Penyerang AS Roma, Mattia Destro, dilaporkan tengah masuk radar pembelian klub Premier League, West Ham. Kehadiran pemain 24 tahun itu memang dibutuhkan oleh The Hammers untuk menambah daya gedor klub musim depan.
Meski telah memiliki lima striker saat ini, namun Slaven Bilic mengaku masih akan mencari sejumlah pemain untuk memperkuat klub yang bermarkas di Upton Park tersebut.
Lini depan memang tengah menjadi prioritas utama Bilic, terlebih hanyaDiafra Sakho saja yang dinilai mempunyai kemampuan mencetak gol terbaik di tim. Destro juga dinilai akan menjadi tumpuan lini serang West Ham yang di musim depan berlaga di kompetisi Liga Europa.
Musim lalu, Destro dipinjamkan ke AC Milan dan sukses mencetak 8 gol dari 31 penampilan di Serie A. Sebelum menjalani masa peminjaman di San Siro, ia sukses membukukan total 24 gol dari 57 penampilannya bersama Giallorrosi.
Bilic tentu akan senang dengan kedatangan sang pemain di bursa transfer musim panas kali ini. Pasalnya, mantan manajer Kroasia itu menargetkan West Ham bisa berprestasi lebih baik.

Wasignton 11 said...

Djokovic Menang Mudah Atas Maric Cilic
http://www.football-images.net/2015-07-10/731f49b40ad6defa215ef7dae9ac43b6.jpg[img/]
Agen Indo11 Terpercaya indo11.com melaporkan, Novak Djokovic masih menghidupkan peluangnya mempertahankan gelar juara turnamen Wimbledon. Di tahun ini, langkah Djokovic belum terhenti. Ia baru saja lolos ke babak semifinal usai mengalahkan Maric Cilic, Kamis (9/7/2015).
Tampil di Centre Court, Djokovic bermain lebih percaya diri. Hal itu bisa dibuktikan dari dominasinya atas Cilic. Sempat dipaksa melakukan reli panjang, Djokovic akhirnya menuntaskan set pertama dengan kemenangan 6-4.
Skor yang sama juga terjadi pada set kedua dan ketiga. Cilic yang sudah mengeluarkan seluruh kemampuan terbaiknya tetap dipaksa bertekuk lutut oleh unggulan pertama dunia tersebut.
Sebelumnya Djokovic memang harus bekerja ekstra keras. Menghadapi Anderson, Djokovic dipaksa melakoni permainan lima set. Juara Wimbledon 2014 itu akhirnya bisa menang dengan skor 6-7(8), 6-7(8), 6-1, 6-4 dan 7-5.

Quess 11 said...

Liverpool Masukan Sterling ke Tur Pra Musim
http://www.football-images.net/2015-07-10/f17dbab10577372a682d651f1a4a4edd.jpg[img/]
Agen Indo11 Terpercaya indo11.com melaporkan, Raheem Sterling mendapat kabar dari Liverpool bahwa ia harus ambil bagian dalam tur pra-musim yang akan diadakan klub.
Sebelumnya sempat muncul laporan yang mengklaim bahwa wingerInggris tersebut telah memberitahu bosnya ia tidak akan ikut pergi ke Australia bersama rekan-rekan setimnya akhir pekan ini.Tak lama kemudian, ia tidak muncul di sesi latihan lantaran mengaku sakit.
Kini, dikabarkan bahwa perwakilan resmi klub sudah memberitahu Sterling bahwa ia wajib mengikuti tur yang akan mereka adakan akhir pekan ini.
Sterling sendiri tengah memaksakan kepindahannya ke Manchester City, namun hingga saat ini Liverpool tetap bergeming. Tim asuhanManuel Pellegrini sudah dua kali mengajukan tawaran dan dua kali mendapat penolakan.

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