Friday, March 28, 2014

1 in 68. 2 of 2.

If you are an autism parent, I'm sure you saw the massive social media frenzy with yesterday's announcement from the CDC. Their new rates of autism are 1 in 68.

Image Source

Well, sort of.

The numbers were accurate 4 years ago.

If you were 8 years old.

And, if you lived in 1 of 11 test site areas.

The rest of us out there were not included in those numbers. Like my boys (who were too young). And like my entire State (which was not one of the test sites).

The whole thing makes me want to puke. Seriously.

I was in a craptastic mood because of the latest and greatest "news" from the CDC and was being fairly vocal about it online when one of my Facebook friends asked me why I was upset.

For SO MANY reasons!

As I told her, it's isn't just about the CDC "math". They obviously need a larger sample size for the analysis to be of any actual value. This 1 in 68 business is just fluff. We need the REAL, CURRENT numbers!

As you know, I have 2 boys diagnosed on the spectrum. Through my nonprofit work I know hundreds upon hundreds of affected children and families that are LOCAL in my area.

In fact, a mom I know said that a classroom in her school has an incidence rate of 1 in every 5 kids in one grade. 1 in 5! And, the next grade is about 1 in every 10 kids. 1 in 10! This is only 2 grades in 1 elementary school, and there are that many kids with autism.

Does this not shock anyone?

Or, shall I say, does this not shock anyone that doesn't already have a kid with autism?

It's safe for me to say that in our local area, the average across schools is approximately 1 kid with autism in every classroom, and likely there are even more than that. This is just my own observation based upon what I know about the area, but I can tell you that my half-assed estimate is far more realistic than the CDC's numbers.

Once again, things are swept under the rug and autism families continue to struggle. Middle class autism families are often in huge crisis all the time. They can't afford therapies because they are too poor (and our State still refuses to mandate autism coverage) and they don't qualify for help from the government because they're too rich. That's a freaking joke. Too rich. Most of these families are single-income because autism can be so all-consuming.

These kids slip through the cracks, they don't get the interventions and education they need, the parents are stressed to the max, some of those marriages fall apart, and the cycle of crisis continues on.

More kids get diagnosed every single day. I meet new families almost all the time. It keeps getting worse.

When will enough be enough?

When will the rate of autism be so shocking to the entire nation that sweeping change and action will be demanded? Does it have to get to 1 in every 5 kids? It may already be in some areas. Or, does it have to be a 100% incidence rate, like it already is with my boys?

6 comments:

gingerheaddad said...

The best line I have read in the last several days about the CDC article is "This 1 in 68 business is just fluff."

In the article the author points out why 1 in 68 cannot be applied to the whole population, which is what every media organization did. A lot of parents did, too.

Thank you for writing this and adding a different take on the now popular "rate" of autism.

Lindsay Beard said...

Really appreciating your blog, and finding this post especially important for others to read

Jennifer Hughes said...

The Sensory Spectrum is hosting a special blog hop of posts from bloggers in June and we'd love to have you participate! Just imagine a list of bloggers sharing their stories about what it’s like to have sensory challenges and what it means to have a sensory kiddo! Read more here: http://www.thesensoryspectrum.com/sensory-bloggers-blog-hop-information/

Joining in on this blog hop will undoubtedly get your blog more exposure as people will hop from one blog to the next to read the stories. I will also be tweeting everyone's stories during the month and highlighting some on my Facebook page.

I hope you'll join us!
Jennifer @ The Sensory Spectrum
(and you can find me @ The Jenny Evolution, too!)

Aesd 11 said...

Phil Mickelson Bertekad Tampil di Olimpiade

http://www.football-images.net/2014-08-22/4d2eec9b130bd653428660be894e7e34.jpg
Agen Bola Terpercaya indo11.com melaporkan, Pegolf Amerika Serikat, Phil Mickelson mengungkapkan bahwa salah satu prioritasnya dalam beberapa tahun mendatang adalah mengamankan tempat di Tim Golf Amerika Serikat untuk Olimpiade Rio 2016.

Cabang olahraga Golf sendiri kembali dikompetisikan di ajang Olimpiade untuk kali pertama sejak 1904. Dengan kembalinya Golf ini, Mickelson pun sangat bersemangat dan bertekad mengamankan tempat di Rio de Janeiro berbarengan dengan komitmen besarnya di ajang PGA Tour.

"Saya tidak tahu mengapa begitu penting bagi saya tapi itulah. Saya ingin menjadi olimpian 46 tahun," ujarnya.

"Jadi 2015 dan 2016 merupakan tahun yang saya ingin benar-benar fokus dan saya ingin memastikan saya siap lagi," imbuhnya.

Wasignton 11 said...


Damien Inglis Gabung, Bucks Kelebihan Pemain

http://www.football-images.net/2014-08-22/e05d249168495d2088ce37c6c6931cd1.jpg
Agen Bola Terpercaya indo11.com melaporkan, Milwaukee Bucks telah melakukan kesepakatan kontrak dengan Damien Inglis, yang dipilih pada putaran kedua NBA Draft. Demikian sebagaimana dilaporkan oleh sejumlah media.

Sebelumnya, Bucks sudah memilih forward 19 tahun itu pada akhir putaran pertama, Juni lalu, sebelum dia mengalami cedera kaki pada masa pre-draft.

Diberitakan Inglis, yang berkebangsaan Prancis, telah membubuhkan tanda tangan di atas kertas kontrak dengan Bucks.

Dengan masuknya Inglis, kini Bucks memiliki 17 pemain dalam daftarnya. Bucks harus menguranginya menjadi 15 pemain ketika musim baru NBA akan berlangsung pada 28 Oktober.

Quess 11 said...

Tim Basket AS Beri Waktu Untuk Rose Istirahat

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Agen Bola Terpercaya indo11.com melaporkan, Pemain idola Chicago Bulls, Derrick Rose hanya duduk tenang di bangku pemain saat tim nasional bola basket Amerika Serikat melakukan pelatihan dalam dua hari terakhir.

Point guard 25 tahun itu tak ikut latihan game bukan karena kembali menderita cedera. Namun, menurut kabar yang berkembang, Rose diparkir sebagai langkah pencegahan. Pasalnya, Rose merupakan pemain yang rawan cedera. Musim lalu, dia tercatat hanya bermain sepuluh kali di pentas NBA, setelah satu musim sebelumnya tidak bermain sama sekali.

Meskipun Rose bermain ciamik pada laga persahabatan melawan Brasil minggu lalu, tapi sepertinya dia tidak akan diturunkan dalam laga persahabatan AS berikutnya melawan Republik Dominika di Madison Square Garden, New York, AS pada pertengahan pekan ini.

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Rose sejauh ini telah memperlihatkan performa yang mengesankan selama kamp pelatihan dan dia diperkirakan akan memainkan peran penting untuk tim basket AS di Kejuaraan Dunia Bola Basket di Spanyol, yang akan mulai digelar akhir bulan ini.

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