Friday, March 28, 2014

1 in 68. 2 of 2.

If you are an autism parent, I'm sure you saw the massive social media frenzy with yesterday's announcement from the CDC. Their new rates of autism are 1 in 68.

Image Source

Well, sort of.

The numbers were accurate 4 years ago.

If you were 8 years old.

And, if you lived in 1 of 11 test site areas.

The rest of us out there were not included in those numbers. Like my boys (who were too young). And like my entire State (which was not one of the test sites).

The whole thing makes me want to puke. Seriously.

I was in a craptastic mood because of the latest and greatest "news" from the CDC and was being fairly vocal about it online when one of my Facebook friends asked me why I was upset.

For SO MANY reasons!

As I told her, it's isn't just about the CDC "math". They obviously need a larger sample size for the analysis to be of any actual value. This 1 in 68 business is just fluff. We need the REAL, CURRENT numbers!

As you know, I have 2 boys diagnosed on the spectrum. Through my nonprofit work I know hundreds upon hundreds of affected children and families that are LOCAL in my area.

In fact, a mom I know said that a classroom in her school has an incidence rate of 1 in every 5 kids in one grade. 1 in 5! And, the next grade is about 1 in every 10 kids. 1 in 10! This is only 2 grades in 1 elementary school, and there are that many kids with autism.

Does this not shock anyone?

Or, shall I say, does this not shock anyone that doesn't already have a kid with autism?

It's safe for me to say that in our local area, the average across schools is approximately 1 kid with autism in every classroom, and likely there are even more than that. This is just my own observation based upon what I know about the area, but I can tell you that my half-assed estimate is far more realistic than the CDC's numbers.

Once again, things are swept under the rug and autism families continue to struggle. Middle class autism families are often in huge crisis all the time. They can't afford therapies because they are too poor (and our State still refuses to mandate autism coverage) and they don't qualify for help from the government because they're too rich. That's a freaking joke. Too rich. Most of these families are single-income because autism can be so all-consuming.

These kids slip through the cracks, they don't get the interventions and education they need, the parents are stressed to the max, some of those marriages fall apart, and the cycle of crisis continues on.

More kids get diagnosed every single day. I meet new families almost all the time. It keeps getting worse.

When will enough be enough?

When will the rate of autism be so shocking to the entire nation that sweeping change and action will be demanded? Does it have to get to 1 in every 5 kids? It may already be in some areas. Or, does it have to be a 100% incidence rate, like it already is with my boys?

12 comments:

gingerheaddad said...

The best line I have read in the last several days about the CDC article is "This 1 in 68 business is just fluff."

In the article the author points out why 1 in 68 cannot be applied to the whole population, which is what every media organization did. A lot of parents did, too.

Thank you for writing this and adding a different take on the now popular "rate" of autism.

Lindsay Beard said...

Really appreciating your blog, and finding this post especially important for others to read

Jennifer Hughes said...

The Sensory Spectrum is hosting a special blog hop of posts from bloggers in June and we'd love to have you participate! Just imagine a list of bloggers sharing their stories about what it’s like to have sensory challenges and what it means to have a sensory kiddo! Read more here: http://www.thesensoryspectrum.com/sensory-bloggers-blog-hop-information/

Joining in on this blog hop will undoubtedly get your blog more exposure as people will hop from one blog to the next to read the stories. I will also be tweeting everyone's stories during the month and highlighting some on my Facebook page.

I hope you'll join us!
Jennifer @ The Sensory Spectrum
(and you can find me @ The Jenny Evolution, too!)

Aesd 11 said...

Phil Mickelson Bertekad Tampil di Olimpiade

http://www.football-images.net/2014-08-22/4d2eec9b130bd653428660be894e7e34.jpg
Agen Bola Terpercaya indo11.com melaporkan, Pegolf Amerika Serikat, Phil Mickelson mengungkapkan bahwa salah satu prioritasnya dalam beberapa tahun mendatang adalah mengamankan tempat di Tim Golf Amerika Serikat untuk Olimpiade Rio 2016.

Cabang olahraga Golf sendiri kembali dikompetisikan di ajang Olimpiade untuk kali pertama sejak 1904. Dengan kembalinya Golf ini, Mickelson pun sangat bersemangat dan bertekad mengamankan tempat di Rio de Janeiro berbarengan dengan komitmen besarnya di ajang PGA Tour.

"Saya tidak tahu mengapa begitu penting bagi saya tapi itulah. Saya ingin menjadi olimpian 46 tahun," ujarnya.

"Jadi 2015 dan 2016 merupakan tahun yang saya ingin benar-benar fokus dan saya ingin memastikan saya siap lagi," imbuhnya.

Wasignton 11 said...


Damien Inglis Gabung, Bucks Kelebihan Pemain

http://www.football-images.net/2014-08-22/e05d249168495d2088ce37c6c6931cd1.jpg
Agen Bola Terpercaya indo11.com melaporkan, Milwaukee Bucks telah melakukan kesepakatan kontrak dengan Damien Inglis, yang dipilih pada putaran kedua NBA Draft. Demikian sebagaimana dilaporkan oleh sejumlah media.

Sebelumnya, Bucks sudah memilih forward 19 tahun itu pada akhir putaran pertama, Juni lalu, sebelum dia mengalami cedera kaki pada masa pre-draft.

Diberitakan Inglis, yang berkebangsaan Prancis, telah membubuhkan tanda tangan di atas kertas kontrak dengan Bucks.

Dengan masuknya Inglis, kini Bucks memiliki 17 pemain dalam daftarnya. Bucks harus menguranginya menjadi 15 pemain ketika musim baru NBA akan berlangsung pada 28 Oktober.

Quess 11 said...

Tim Basket AS Beri Waktu Untuk Rose Istirahat

http://www.football-images.net/2014-08-22/f86a6fc0c242366d201a116f592bf8a7.jpg
Agen Bola Terpercaya indo11.com melaporkan, Pemain idola Chicago Bulls, Derrick Rose hanya duduk tenang di bangku pemain saat tim nasional bola basket Amerika Serikat melakukan pelatihan dalam dua hari terakhir.

Point guard 25 tahun itu tak ikut latihan game bukan karena kembali menderita cedera. Namun, menurut kabar yang berkembang, Rose diparkir sebagai langkah pencegahan. Pasalnya, Rose merupakan pemain yang rawan cedera. Musim lalu, dia tercatat hanya bermain sepuluh kali di pentas NBA, setelah satu musim sebelumnya tidak bermain sama sekali.

Meskipun Rose bermain ciamik pada laga persahabatan melawan Brasil minggu lalu, tapi sepertinya dia tidak akan diturunkan dalam laga persahabatan AS berikutnya melawan Republik Dominika di Madison Square Garden, New York, AS pada pertengahan pekan ini.

"Saya sangat senang di mana saya berada sekarang. Saya hanya berusaha bisa mengambil waktu saya dan mendapatkan istirahat, karena kami memiliki jadwal panjang di depan kami," tukas Rose.

Rose sejauh ini telah memperlihatkan performa yang mengesankan selama kamp pelatihan dan dia diperkirakan akan memainkan peran penting untuk tim basket AS di Kejuaraan Dunia Bola Basket di Spanyol, yang akan mulai digelar akhir bulan ini.

Aesd 11 said...

Carlo Ancelotti Keluhkan 'Virus FIFA'
http://imagizer.imageshack.us/v2/xq90/540/GRR4I9.jpg

Agen Bola Melaporkan Berita Olahraga Terkini dan terbaru Indo11.com Madrid - Jelang pertemuan melawan Atletico Madrid, Real Madrid malah kehilangan beberapa pemain akibat cedera. Pelatih Madrid, Carlo Ancelotti, pun mengeluhkan cedera pemain akibat 'Virus FIFA'.

Yang dimaksud dengan 'Virus FIFA' adalah cedera-cedera pemain yang terjadi kala memperkuat tim nasional masing-masing. Ini jadi hal yang menyebalkan buat manajer-manajer klub manakala mereka tengah mempersiapkan tim menghadapi laga penting.

Untuk Madrid, setidaknya ada seorang pemain yang pulang ke klub dengan cedera kala jeda internasional. Pemain itu adalah Dani Carvajal.

"Kami memang tidak punya keberuntungan kalau sudah berkaitan dengan tim nasional. Ini cerita yang sama seperti musim kemarin," keluh Ancelotti.

Wasignton 11 said...

Cedera Ringan, Ramsey Juga Disebut Bisa Dimainkan Saat Menjamu City
http://imagizer.imageshack.us/v2/xq90/674/uTweP0.jpg

Agen Bola Melaporkan Berita Olahraga Terkini dan terbaru Indo11.com London - Menjelang laga krusial dengan menjamu Manchester City, Aaron Ramsey masih dibekap cedera. Tapi, manajer The Gunners Arsene Wenger optimistis gelandang 23 tahun itu bisa diturunkan.

Wales unggul 2-1 atas Andora dalam Kualifikasi Piala Eropa 2016 tengah pekan lalu. Tapi Wales harus membayar mahal kemenangan itu dengan cedera engkel kanan Ramsey.

Imbas langsung dirasakan Arsenal. Sebab, Arsenal punya laga krusial pada Sabtu (13/9/2014) malam WIB. Mereka dijadwalkan melakoni laga home dengan City di Emirates Stadium. Kubu 'Gudang Meriam' sempat dibuat harap-harap cemas dengan kondisi itu.

Wenger tak memungkiri kekhawatiran sempat hinggap di kepala dia. Dia was-was Ramsey kembali masuk ruang perawatan sekitar hingga berbulan-bulan seperti musim lalu. Tapi rupanya Arsenal mendapatkan kabar gembira.

"Kami akan memastikan lagi cedera Ramsey hari ini. Dia masih mempunyai peluang kecil untuk tampil pada pertandingan Sabtu. Dia dibekap cedera engkel minor," ucap Wenger.

Quess 11 said...

Del Potro Tunda Comeback
http://imagizer.imageshack.us/v2/xq90/540/tvrlUu.jpg

Agen Bola Melaporkan Berita Olahraga Terkini dan terbaru Indo11.com Melbourne - Petenis Juan Martin Del Potro belum akan kembali mengayun raket dalam waktu dekat. Dia menunda rencana untuk kembali bertanding karena masih butuh waktu untuk memulihkan kondisi pasca operasi pergelangan tangan.

Masalah di pergelangan tangan tangan kiri mengganggu perjalanan karier Del Potro selama tahun 2014 ini. Meski mengawali tahun dengan menyabet gelar juara di Apia International Sydney, petenis asal Argentina itu tak pernah melaju lebih jauh daripada perempatfinal di tiga turnamen berikutnya yang dia ikuti. Di Australia Terbuka, Del Potro bahkan sudah tersingkir di babak kedua.

Turnamen Dubai Tennis Championships di bulan Februari lalu menjadi penampilan terakhir Del Potro di tahun ini. Dia langsung angkat koper di babak pertama. Kala itu, Del Potro tak mampu menuntaskan pertandingannya melawan Somdev Devvarman karena pergelangan tangannya kembali cedera.

Di bulan Maret, Del Potro akhirnya memutuskan untuk menjalani operasi untuk menuntaskan persoalan cederanya itu. Akibatnya, petenis 25 tahun itu harus melewatkan tiga grand slam (Prancis Terbuka, Wimbledon, dan Amerika Serikat Terbuka) serta rangkingnya anjlok ke nomor 13 (dari posisi empat).

Del Potro sebenarnya sudah berencana untuk kembali bertanding di tur Asia dengan berpartisipasi di Malaysia Terbuka, Jepang Terbuka--di mana dia jadi juara tahun lalu--, serta Shanghai Masters. Namun, karena menilai dirinya belum fit sepenuhnya, juara AS Terbuka 2009 itu memutuskan untuk menunda comeback-nya.

Aesd 11 said...


Rossi to come back stronger

http://www.football-images.net/2014-10-21/52c5488ff781ebd5755c133e053ead3f.jpg
Famous Agen Bola indo11.com mentioned, Giuseppe Rossi's agent revealed that his client will return stronger than before, denying the future of the Fiorentina striker is at risk following his latest knee injury.
The representative said: "The recovery process is on schedule. I have read and heard all sorts of things, but it is part of the world we live in. That's why I haven't spoken to the media since late August, as more balance and responsibility is needed.”
He added: "Rossi will be back stronger than before. He faced this injury with the same tenacity and I get the sense he's in a better mood than the other times. We know the medical situation and are optimistic. I can clearly say the rumour Rossi's career is at risk is entirely false and without foundation."


Wasignton 11 said...

Delph might need shoulder operation

http://www.football-images.net/2014-10-21/ea2001c7a9f7c02c3f8f6cfe43c18b97.jpg
Aston Villa manager Paul Lambert has revealed Fabian Delph’s possibility to have surgery after suffering a shoulder injury.
When asked if Delph had suffered a dislocation, the manager said: "Aye, [it's] probably that. Whether it is enough to allow it to rest for a couple of weeks I don't know or if there is more to it. I am pretty sure the medical people will discuss that.” As pointed by Agen Bola indo11.com
He added: "That's the thing, we don't know. That will be left up to the medical people to see what is the best procedure for it. It was an awkward fall. No-one was near him. He fell on his shoulder. It is not always straightforward so we need to go and get it checked out.”

Quess 11 said...

Del Bosque to resign after Euro 2016 finals in France

http://www.football-images.net/2014-10-21/f9f028861c09d25ece3d6e2228783b85.jpg
Well-known Agen Bola Indo11.com revealed, Vicente del Bosque has confirmed his resignation from his role as Spain head coach after the Euro 2016 finals in France.
Del Bosque said: "In life you cannot be certain of anything. Also, in my case, the federation will have to make a smooth transition, but I will stay close to football and to the federation.”
He added: "I think the criticism from people has been fine and comprehensive. They have always given me and the team affection. Then there has been those who have been a bit more hostile, but I will not fight with them, I do not want to."

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