Monday, May 2, 2011

Every day is autism awareness day

April was Autism Awareness Month. You may have noticed the list of blogs I had at the bottom of each post this past month. I had the privilege to share my blog with some great mommies for the entire month in order to draw attention to autism. I hope you had a chance to hop around and visit some of those blogs.
Now that it’s May, Autism Awareness Month is officially over. But, that doesn’t mean that autism awareness just hides in a dark drawer somewhere until next year. There are MANY families like mine that recognize autism awareness every single day of our existence.
Please do not forget about us.

On behalf of all of these families, including my own, here are some things I’d like you to know:
Some days we learn a lot from autism.
Some days we feel completely ill-equipped to handle autism.
Some days we despise autism with every cell in our body.
Some days we appreciate a new perspective given to us courtesy of autism.

Nonetheless, families like mine are here. Fighting. Hard. There are lots of us, and our numbers increase every day.  
We are exhausted.
We are broke.  
We agonize about the future.
We just want to make it through each day without incident.
We wonder what our child’s experience of life is like.
We struggle.
We celebrate each success.
We wish we understood our children more.
We love our kids.


Flannery said...

You said it, sister! Especially the exhausted and agonizing about the future part. We can only hope that things will get easier with time.

Caffeinated Autism Mom said...

Yes, that is the hope, isn't it? We seem to go through cycles of bad, then it swings to the good. The good might last long enough for me to think that we've moved past some of our issues, and then all of a sudden, the bad rears its ugly head once again. We're going through a swing to the bad right now. Not fun. It's hard to have long-term thinking when you can barely get through some days. Three steps forward, two steps back. Thank you for your comment, Flannery! I hope to see you around here again soon. :-)

Need To Change said...

'Some days we appreciate a new perspective given to us courtesy of autism'

This is what I was trying to explain to my cousin who's son was recently diagnosed. He is only 3 and my daughter is about to turn 8 so we are on different wave lengths right now. I have had my eyes open to a world I didn't know existed before. Seeing the world thru her eyes has been an amazing experience. Sure the rest has been very hard and I hurt for her daily but she is amazing.

Caffeinated Autism Mom said...

Thank you, Need To Change. I'm glad I'm not the only one who feels this way. It's easier to understand this when you don't feel quite so in the middle of the "crisis" and are instead able to get a little distance from the shock of the diagnosis. Our kids can really teach us a lot, can't they?

xl pharmacy said...

You are right! autism is a problem for every day!

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