Monday, March 12, 2012

New autism prevalence numbers

Did you hear that the CDC is going to share their latest numbers on the prevalence of autism in the United States? The last time they released autism rates was in 2009, so an update is certainly due.

I read about this in an article from Disability Scoop, dated March 9, 2012. The snarky side of me wants to take bets on the day they will release the numbers, as well as what the actual numbers will be. Care to make a friendly wager?

Will the CDC release the new numbers in time for World Autism Awareness Day?
Or, will they mention it in some teeny byline on Tax Day (or some other newsworthy day), thereby diverting attention from the brand new statistic?

Will the CDC’s numbers show a significant increase, more closely mirroring the study done in South Korea that found an autism rate of 1 out of every 38 children?
I think it would be nearly impossible for the numbers to be “better” than they were. I keep hearing of new cases in my community almost every day and I have to believe that this is happening everywhere else, too.

What I really want to know is:
How high must the prevalence be in order to warrant a state of alarm across the United States?

When will people wake up to the epidemic of autism and see it for the burgeoning issue that it is?
Autism affects those with the diagnosis, their parents and families who care for them, the doctors who diagnose them, the professionals who treat them, the teachers who teach them, and the list goes on and on… 

When will every State enact legislative change in order to help this exploding population?
Here in Washington, we are still waiting for the right to not be subjected to medical insurance discrimination. Some day we will catch up with other States that have figured out that medically-relevant therapies are not only helpful, but necessary for those with autism.

Any parent of a child with autism can tell you that it is truly a life-changing experience to have a child diagnosed with autism. (In my case, more than one child!) Your life is different than you imagined it would be. It’s definitely not typical. It can be absolutely beautiful in unexpected ways, yet it remains a difficult journey for both you and your child. It really is a spectrum of experiences, with each one unique.
I’ll leave you with a quote that a Facebook friend of mine shared (which I immediately stole for my own profile after I read it!):

If 1 out of 91 children were being kidnapped, we’d have a national emergency.
We do. It’s called Autism.
When will the prevalence of autism become a national emergency?
I’m still waiting for that day… 


Chelle said...

And one of them is mine too...

What an awesome post. Thank you. Sometimes I grieve deeply because my son isn't neurotypical and he is old enough now to understand he is different and it breaks my heart.

Thank you. I will be sharing this with everyone I know.


Missy said...

I have one.
I wonder what the numbers will be like and how that will affect the DSM

Lizbeth said...

That quote is shocking and utterly true. Sigh.

Jen @ TheUnProcessedKitchen said...

This is a great post!! I'm happy that Michigan is considering legislation to cover Autism treatments. I wish that conversation were going so well in every state, though.

ChaCHA online said...

I have two as well. Thanks for sharing you thoughts. I always look forward to reading your new posts.

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