Friday, April 13, 2012

Flashback Friday: Another Bad Mommy Moment

Yesterday morning I had a moment of déjà vu. I found myself in the same situation with Prince Charming that I was in over a year ago with Monkey. It starts with a tired mom forgetting to finish the laundry and ends up with at least one boy without dry clothes to wear to school.  


In this situation, Prince Charming had a much more difficult time accepting the change in circumstances than Monkey did last year.

Luckily I found a pair of pants for him to wear that were hiding out in Monkey’s dresser drawer and happened to be the right size. Can you say minor miracle? He objected to the idea of a new pair of pants he’d never worn before. After significant prodding, he put them on and they fit perfectly. He was a very happy little boy when he got on the school bus. Thank God.
To read about the original Bad Mommy incident, click here.

Wednesday, April 11, 2012

Wordless Wednesday: Toothy Milestone

Prince Charming recently reached an important milestone! At the ripe old age of almost 7, he lost his first tooth!

I've been home for every single loose tooth that Monkey has had so far, and I'm sad to say that I missed Prince Charming's big occasion entirely. I was out of the house working on taxes for my nonprofit, of all things. Total bummer.

After all was said and done, I got a Skype video call on my cell phone and saw his happy, tear-stained face. He was so proud of himself. My little boy is growing up.

The following pictures were taken by my hubby to document the big event. :-)   


Prince Charming was eating lunch, bit into an apple slice, and the rest is history. He was fairly traumatized, especially because it meant he couldn't finish his lunch until the tooth was pulled. He couldn't handle the sensation of the loose tooth in his mouth and everything came to a screeching halt until it was dealt with.  


Daddy to the rescue! After much reassuring and coaxing, Prince Charming allowed Titan to pull that pesky loose tooth. He was so proud to tell me about his bravery and to show me the "hole" in his mouth. 

Sunday, April 8, 2012

Happy Easter 2012

Image from Mars Hill Church. www.marshill.com

This morning we took our boys to Easter service at church. We haven't attended church on Easter Sunday for a few years because of the stress involved with the crowds, noise, etc. We made the effort this morning, and I am happy (and surprised!) to say that the boys did much better than we expected.

As we drove to church, we talked about what they could expect when we arrived and what could possibly happen. We also talked about the importance of being flexible if things didn't occur exactly the way we thought. The boys listened.

We brought a small toolkit of things to help them get through the service, including earmuffs for Prince Charming. Monkey didn't need any tools, and he actually listened to the Pastor and enjoyed the music.

It was probably the best I've ever seen them in church. Titan and I are so proud of them!

If church is difficult for you to attend like it has been for us, click here to read about how we celebrated Easter last year. 

Happy Easter!

Wednesday, April 4, 2012

Autism epidemic, continued

Last week I told you how I felt about the new autism numbers per the CDC. In case you missed it, the prevalence of autism is now 1 in 88. My post prompted a rather lengthy comment from Heidi that I felt needed further discussion. I reached out to my blogger friend, Cari from Bubble Gum on My Shoe (an awesome gal who has done guest posts for me before – here and here), to help me field the questions that Heidi posed. Without skipping a beat, she got right to it and added some great value to the discussion. Unfortunately, my mind doesn’t work that fast and I needed a bit more time. I want to continue on what Heidi and Cari started, and weigh in with my own thoughts, too.

Well, what I didn’t realize is how much I would have to say about this! My post got to be out of control and way too long for any sane person to read. In an effort to save you from reading for over an hour, I broke up some of it into a separate post on Monday to coincide with World Autism Awareness Day.
So, now I’ll bring you back to the original comment that spurred this on and begin the discussion. Get ready....here we go!



Monday, April 2, 2012

World Autism Awareness Day 2012

Today is World Autism Awareness Day. Originally I was going to post a response to the comments from my post last Friday, “Autism epidemic, anyone?” That follow up post has taken on a life of its own. It’s gotten much bigger than I expected, and I’m still not done writing it. So, I thought I would take a portion of it and break it down a bit, and then I’ll post the rest of it in the next day or two.

Since today is a significant day in the autism community, I thought I should go along the awareness vein and share som very pertinent and timely information that I learned from a friend of mine, Marcella Piper-Terry. She is an independent researcher and has a firm grasp on statistics. She started crunching some numbers related to the autism prevalence and tried to bring those numbers into the present day (since the numbers the CDC released are OLD and out-of-date). See my last blog post for the full explanation of why the CDC’s numbers are old and not very relevant for us today.
What Marcella came up with was shocking. I have no way to verify her numbers, but I appreciate her taking the time to try to make some sense out of things for the rest of us. Regardless, her numbers have much more value to me than what the CDC presented last week.

There was a lot of shock surrounding the increase of autism to 1 in 88. Well, that may be so, but how shocked will you be when you know what the current number is? Keep in mind, Marcella could only go forward with the trends already established. The CDC does not use a population-based model. It is a scattered, incomplete pool of data. If we had more complete numbers that were more representative of the population, I know in my heart that even the numbers Marcella came up with are VERY conservative. The sheer enormity of that, my friends, is what we should be shocked by.

The following are her numbers and her words as she describes them: 


The CDC says the rate of autism is 1 in 88. That number is four years old and is calculated for children who were 8 years old in 2008. The number reflects a 78% increase over the 1 in 150 number that was from 2002 (announced in 2007). Dividing 78% (rate of increase) by 6 (number of years from 2002 to 2008) we get a yearly increase of 13%. This allows us to calculate (approximately) the true rate of autism for 8 year olds in 2012. Using the same 13% per year increase we can extrapolate out five years and figure the approximate true rate of autism for children who are now between 3 and 8 years of age. This photo album contains my chicken scratch notes as I performed these calculations.



Long numbers. I didn't round off anything because I wanted to be completely exact in my calculations. This started out to be just a little exploration, but soon became one of those "Oh, My God... I have to finish this" things. That's why it gets more organized toward the end.

I started with the 1 in 88 number, calculated for 8 year-olds in 2008. This equals 1.14%. The 78% increase over the 1 in 150 number (from 2002) is divided by six (number of years from 2002 to 2008) for an average yearly increase of 13%.

Calculating the yearly increase yields the following:
1 in 78 (2009)
1 in 69 (2010)
1 in 61 (2011)

These numbers are for 8 year-olds diagnosed with autism.
The current number for 8 year-old diagnosed with autism is estimated to be 1 in 54.

Current rates (2012) for children who are less than 8 years old:
1 in 48 for 7 year olds;
1 in 42 for 6 year olds;
1 in 37 for 5 year olds;
1 in 33 for 4 year olds;

1 in 29 for 3 year olds.in 29 for 3 year olds.


Are you scared yet?
Here is something else to think about...
The rate of increase used to calculate these statistics is based on CDC data gathered in 2008. That was before the 2009 H1N1 scare. These numbers are based on the real-world scenario BEFORE the push for the flu vaccine for pregnant women and infants beginning at six months of age. That means that even as ghastly as these numbers are, they are underestimates of the true magnitude of this crisis.
Extrapolating out for the next ten years:
2013 = 1 in 26;
2014 = 1 in 23;
2015 = 1 in 20;
2016 = 1 in 18;

2017 = 1 in 16;
2018 = 1 in 14;
2019 = 1 in 12;
2020 = 1 in 11;
2021 = 1 in 10;
2022 = 1 in 9.6;
2018 = 1 in 14;
2019 = 1 in 12;
2020 = 1 in 11;
2021 = 1 in 10;
2022 = 1 in 9.



I encourage you to look up my friend Marcella Piper-Terry on Facebook and visit her website. She is a force, and she is much more knowledgeable on topics related to autism than I am.
As part of launching Autism Awareness Month and recognizing that today is World Autism Awareness Day, I will share with you one of my favorite slogans about autism. In fact, I purchased a button with this saying and I wear it during the month of April.

April is Autism Awareness Month. Every day is Autism Awareness Day in our home.    
I support Autism Awareness, but I would like to think that we are becoming more aware of autism. The big question mark of “what do we do now that we’re aware of autism” makes me further endorse April as Autism Action Month. We need to act on behalf of our children. 

My friend Cari from Bubble Gum on My Shoe took it a step further and made a t-shirt that says:

My kid has autism. Yours is next.


She’s right. We cannot sit back and do nothing.
I encourage you to speak with your legislators about autism. Share your story. Find autism organizations that are making meaningful contributions to your community and support them. Connect with other autism parents online and locally through support groups. We are each other’s best resource. Let’s act together and try to create positive change for our kids.  
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