Monday, April 16, 2012

Book Review & Giveaway: The Golden Hat

Last April I first shared with you about Kate Winslet’s upcoming book entitled, The Golden Hat. I was intrigued by how she became friends with an autism family following her experience of voicing the English narration of their film, A Mother’s Courage. The documentary chronicled the story of Margret and her son, Keli, a teenager with nonverbal autism.

Kate shares how she became emotionally invested in the family:
Through working on the film, I entered a new world of families with children who have autism, where the challenges they face daily are profound and overwhelming. The look on Keli’s face when he typed his first words to me touched me as a mother, and as a human being. I witnessed Margret discover her son after years of silence. As a mother of two very verbal, expressive, affectionate children, it wasn’t enough to provide this narration alone and to simply walk away.

Taking inspiration from Keli’s new ability to communicate and a poem he wrote about a magical Golden Hat. The hat that Keli described could help a boy without a voice to talk. Kate decided to send around one of her old hats and ask celebrities to take their self-portrait.  She asked that those who took a photograph while wearing the hat would think about those individuals with nonverbal autism and then express something important to them.
Margret begins her story with the following:

Imagine waking up in your bed, just as you are now, with all your mental capacity and intelligence. In your mind, you know that everything is the way it is supposed to be…except one thing. Your senses are all mixed up. You cannot see and hear at the same time. You only get a fragmented view of your environment. You have little sense of where your body is. You cannot speak. You have no voice.
Margret had been told that her son, Keli, only had the capacity of a 2-year old. This obviously tempered the way she treated him. It was incredible to read about how everything she thought she knew about her son was actually incorrect, like when she learned his favorite authors were Twain and Tolkien and not Teletubbies. I can hardly imagine how she must have felt when she realized so many new things about her son. Particularly heartbreaking was her description of some medical issues her son went through. A child without speech is exceedingly difficult to diagnose!

The more I read, the more I wanted to learn about her son’s story. In fact, I added her documentary to my Netflix queue. I can’t wait to watch it! I am interested to see how Keli progressed from nonverbal to communicating through the RPM (rapid prompting method) via HALO in Austin, Texas. I actually know a local family who utilized RPM and HALO and I can’t wait to learn more about it and about Keli’s journey into communication.  
I love how Margret ends her chapter:

Now imagine going to bed. Everything is as it is supposed to be, except one thing. Your senses are all mixed up. You sense your surroundings in a fragmented way. But you are assured. You know that you are among people who care for you. People who are willing to fight for you and do their best to lend you a voice. You close your eyes, knowing that when you wake up the next morning, you have the means to communicate your desires, wants, and feelings.
Now that’s something to be grateful for.

For me, The Golden Hat: Talking Back to Autism was well worth the read even if I hadn’t seen the pictures and quotes from the various celebrities. I was enthralled by the stories from Margret and Kate, and it was really interesting to read the various emails that went back and forth between them as the book idea and The Golden Hat Foundation came into existence. I love the genuine spirit between these women and know they have forged a friendship to be cherished.
I especially love that all of the proceeds from the book will benefit The Golden Hat Foundation, which seeks to build innovative living campuses for people with autism.

The celebrity photos and quotes are just icing on the cake. The sheer number of famous people who participated in Kate’s book project is pleasantly surprising. The book gives the feel of a more substantial coffee table book, with full color photography (albeit candid self-portraits taken with a point and shoot camera). Some celebrities really took the project’s intent to heart as they provided their quote. Others? Not so much. But, the result is an eclectic mix of perspective that is fun to read through.
Some of the most touching quotes are from individuals on the autism spectrum who are nonverbal.

At the age of 14, Keli communicated, “I am real.”

In response to the question, “What have you been doing all these years?”, 19-year old Dov said, “Listening.”

The Golden Hat: Talking Back to Autism is a book that I consider a conversation starter. If we have not been personally touched by a nonverbal child with autism, this book will serve as a great place to begin thinking and talking about it. And, it’s obviously fun to see some of your favorite celebs in personal moments (not airbrushed and perfectly coiffed).
Bravo to Kate Winslet for getting involved and trying to make a difference in the autism community, and kudos to Margret and Keli for serving as inspiration to other nonverbal autism families out there.

Disclaimer: Simon & Schuster, publisher of The Golden Hat, provided me with a copy of the book at no charge in exchange for my opinion and review.
Now, here’s where it gets exciting…

Since the copy I received will be donated to my nonprofit's lending library, Simon & Schuster agreed to send me another book to give away to one of my readers! Isn't that great?
You have an opportunity to win a copy of The Golden Hat! To enter, please follow the instructions below.   

a Rafflecopter giveaway


Yvette said...

Wow! This is the first I've heard of The Golden Hat. I would love to read the book and see the documentary as well!

hannah povey said...

hi not sure if ive done this right. if I had a magic hat I would say I love you! as a mum of a son with autism although he has limited speech he has never said it and I know it would mean the world to lots of family's. xx

Lauren said...

I would love to see the documentary as well! Thanks for sharing with us.

stiletto storytime said...

As the mother of a child with autism who just recently has begun to speak, I have thought about this question a lot in the last few we waited for words. William's first word was "Wow" and I like to think that was his response to the world around him. His next words were baby referring to himself and then "Mommy". If I was non-verbal and could say one thing it would probably be that "I am in here...don't give up". Because although William has yet to say it..I know he is and I will NEVER give up. Thanks for the wonderful review and the chance to win this amazing book.

marisa said...

I saw this movie recently..loved it.

I would probably say Thank you :) I love hearing that from my kiddo.

ChaCHA online said...

I am so excited to read this book now! And I am about to add the documentary to my Netflix queue too.

Bronwyn @ At Home Mum said...

As a other of a non-verbal child with autism I am grateful to Kate Winslet and her team for putting this book together. I want to get a copy ... I guess it is just a matter of when.

Thanks for such a great review.

Anonymous said...

Would love a copy as I have a nonverbal teen.

Effie said...

My son is non-verbal. I am trying (with nearly no success yet) to incite communication using an iPad we were given at Christmas. His receptive language is very limited. I don't know if I will ever "hear" him express any concepts as abstract as his "hereness". Yet, we work at it daily. Some days are better than others.

Kristi Peifer said...

My youngest is non-verbal. We recently saw this documentary, and it was excellent! In fact, we are now looking into RPM as a means to help him. I'd love to read this book, too!

mindy m. said...

Sounds like a book worth reading!!!

Audrey B said...

I would love to read and comment on this book. I too have a son with autism and always am reading anything to help him. I love seeing more and more people getting involved to help families with autistic children and the Golden Hat Foundation sounds like it is working to fill a huge void in helping our children as they grow up!

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